Just help me be full of energy please

I have been feeling increasingly tired I had anesthesia on February 3rd.

No one is able to explain why this is happening.

My liver is not working properly.  I have a disease called Alpha-1 Antitrypsin Deficiency (causing liver cirrhosis, portal hypertension, and an enlarged spleen) plus I have methylation issues as part of medical factors attributed to autism.

Having pain in my stomach last Tuesday had us go to emergency at the Hospital for Sick Children in Toronto.  After ruling out the logical explanation for my symptoms, we were admitted and the search for answers began.  No good explanation was found by my team of doctors.  They were very thorough, interested in all I had to say to help them, and nice.  However, sent me home with all normal (for me) test results.

We will follow up with my regular liver doctor next week.

Not having answers or a plan sucks.  I just want my energy back.  In the meantime, I am budgeting my energy so I can accomplish things in my day and relying a lot on my impulsive calming stims to take care of myself.



8 thoughts on “Just help me be full of energy please

  1. crocker42

    Dearest Jordyn, in the past I have been focussing on praying for your ability to communicate easily, and that you will have satisfying, healthy and rewarding relationships. I have been praying for your liver to be healed, but not focussing on that. From now onward, that will be my main focus.
    Feel better Sweetheart. I love you,

    Liked by 1 person

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