Have patience please

No amount of prompting can help when I am totally spent.  I just need to recharge and gain control again.

I get it is sometimes hard to know whether my body is reacting to stimulus and we should work through it, or it is time to call it a day (see above).  Sometimes I don’t know myself, until I know.

Making big steps with body control sometimes requires a combination of patience, loving intentional prompting, and definitely grounded teamwork.  Each time I take on a new challenge I must be willing to be gentle with myself, as getting frustrated with myself just compounds my dysregulation.

I wish I could just snap my fingers and be able to learn a new motor pattern, but that is not how my body works.  Fighting that battle is just wasted energy that I could use for good somewhere else.  Better to go with the flow and come back another day when the dysregulation current is slower and I have a chance of swimming against it purposefully than get caught in it and lose control all together.

I share this in hopes of helping others with similar issues with energy as me.  The war is won with smart strategy, not barreling forward half-cocked.  Let’s gain control in a smart, strategic, and balanced fashion.  One where we make small and steady gains, and feel satisfied at every step.  That is a life filled with joy, productivity, and big goals completed.  All of us are so deserving of that.  Bite what you can chew!

Intentionally recharging,

I am one sensitive guy

Being so sensitive can really mess with my productivity.  Like the two hour nap I just took to recover from travelling all day yesterday.  When I say just, I mean between my first and second sentences of this blog post.

I don’t quite know how to explain this to you, but I will give it my best shot.

I guess I could use and analogy, borrowed from my friend Valerie.  Everyone gets a certain number of energy dots a day.  For you, they last you all day and then some.  This is because the amount of dots you need to perform everyday things, like basically anything, is minimal.  But for me, I must take careful inventory and plan my activity accordingly.  Going into a public place like an airport may cost you a couple of dots, but for me it wipes out my cache for the day.

You see, from the auditory and visual over-stimulation to the emotional climate of frenetic travelers, to the energy required to get from point A to point B globally and inside the airports, it takes every dot I have to manage my body to be somewhat together.  I stim a lot while we travel to support myself in blocking out the sensory assault as much as possible.  You would see me drawing and writing on my doodle board, scripting indistinguishable passages from videos, or just plain falling asleep.

Going on trips we bank in a day after we arrive of nothing and a day after we get home of next to nothing.  I’m always a big pile of goo those two days.  Additionally, any big outing should be followed by a day of nothing.  I am a willing fun participant for all outings as long as they are spaced for some energy dot stockpiling.  I love love love adventures.

Loving and ingenious Mommy has deciphered the pattern and every trip we learn something new about how to make the trip more full and productive.


Do you believe in Freedom of Choice?

I am saddened to update you that ASHA has adopted the position statement they asked for feedback regarding.

This is a foggy but necessary time in our road to acceptance and unquestioning belief.  Like many truths that have come to be realized, first they laugh, then they scorn, then they see their error.

Love is the answer, always! PLEASE don’t fill yourself with anger, it never helps anything.

Going the route of derogatory comments and hate, defense and war, quite frankly is what has the World in the state it is right now.  You have the choice in each moment to understand, to inquire, to listen carefully and to find common ground.  We are the change we want to see in the World.

Just be good humans and we will be on the right side of history.

Remember who you are and stay true to yourselves.




Can we not be silent please?

One thing I have been noticing is how easy it is for parents in group situations to forget to be a Communication Partner for their non-speaker.  Parents get wrapped up in discussing plans for the future or their story of the past and forget to be present in the moment.

A Communication Partner, in my opinion, creates and seeks out opportunities to empower their non-speaker’s voice and intentions.  They are an extension of the non-speaker, not their to hold a board when an opportunity to communicate is presented to them.

My mom is tirelessly ensuring that my intentions are fulfilled in private, and more importantly, when we are in groups of my peers.  She ensures she knows my body management goals and my social goals (who I want to converse with to forward my mission in life).  Getting to all this, while ensuring she takes care of our friends, is a full time job.  I think Mom reached her limit a couple times this month, and is learning boundaries while always expanding her capacity, and never just giving up on who she knows herself to be.  I know I sing her praises often, and that that could be viewed as her influencing as a practitioner, but I believe in expressing gratitude where gratitude is warranted.

Mom has been a champion for full self-expression and powerful communication from long before I was born.  She has empowered more leaders in this world by powerfully listening for what is needed and wanted to fulfill their life’s purpose, than anyone reading this could possibly fathom.  She does this without the need for acknowledgement or accolades, with power, grace, and humility.  She is one no nonsense chick.

But, I digress, and always want people to get her magnificence and how truly gifted she is.  Parents would benefit from watching who she is being and what she is doing.  Plus, benefit from listening to this coaching:  “Be very clear of your, and your non-speaker’s intentions and be straight about whether you will be their parent or their designated Communication Partner at events.  Honour your non-speaker’s intentions and goals.  Be kind and empowering to the voiceless!  Only when given a board and an empowering question can we express ourselves. ”

My mission is to unleash our voices.  Who is with me?

Purposefully passionate,