Many think lack of body control means sudden jerky movements, stimming joyfully without end, or crashing in a blaze of tantrum-like glory when overwhelmed. Blatantly, they forget that control means initiating movement purposefully.
I lack the independent ability to initiate many tasks. Some examples are: belting myself into my seat in the car; un-belting myself from my seat in the car; putting my boots on at the door; joyfully putting the password, which I know, into any device; or getting dressed. I know how to do these things and many more, but my apraxic body gets in the way of demonstrating this.
Thankfully, my parents and support team understand this and support me 100%. They support me with verbal or gestural prompts, letting me build the pathways in my brain to get to independence. Over time we fade these prompts as these things become purposefully initiated and performed by me. Always these supporting prompts come from a place of knowing I know how to do these things, and am stuck.
Another tool we use is having me give my body the prompt by spelling it out on my letter board. 100% joyfully this works, and I get to be in control. But, in -20 degree (Celsius) weather a verbal prompt from Mom to “get in the car” is appreciated.
Coming from a loving intentional and patient place in your heart, I will always appreciate your respect and support to get my body unstuck. Throwing in a bit of playfulness, and wonderful variety to your prompts can’t hurt either.