Good friends make life really 100 % special

I spent the weekend with my amazing friends Kaegan, Ian, Jack, and EJ.  Also made new friends all weekend long.  Had a wonderful time being with Jackson and Ava, while missing Graciela on Saturday night.

All our loving parents could hardly contain themselves, never-mind Julie and Kate bursting at the seams with joy.  Definitely a swirl of emotions.

I met and hung out with my heroes – Ian, Ben, Tom, Huan and Emma – members of The Tribe.  Brent was so amazing and his blankets are made with love and purpose.

My hear almost exploded when I hugged Shelley on Friday, but that didn’t stop me from doing it again Sunday.  I love her so much.

Don’t know how to describe the feelings I had being in a room full of such joyful, beautiful and full of love people.  Only things that come close are after all 100% scatological words, not for all ears.  So, I’ll say fabulous and let your imagination go wild.

Next time I hope Elliot, Isaiah, William, Makaio, Areeb, Matthew, Siobhan, Oskar, Arun, Wyatt, and Evie can make it.  Then my heart will really explode.

Absolutely fulfilled,
Jordyn

Exciting weekend at Motormorphasis Conference

You would all have been 100% in awe this weekend attending the inaugural Motormorphasis Conference in Virginia.  So blessed to participate with a crowd of non, minimally, and unreliable speakers, their families and other professionals.

Defining autism as a motor difference so is 100% correct in my case.  Body and mind are mostly at odds 100% of the time.

I am amazed at how the individuals with a motor difference were able to manage with such an exciting event happening.  We helped each other stay calm and focused.  Being with each other somehow made it easier to be centered.  Just on above always looking out for us, I guess.

So much about our time together to share with you all that I need several blog posts to make sure I do everything justice.  So, look forward to more in depth posts over the next couple weeks.

Just know that I am forever grateful to the Nonspeaking CommUnity Consortium for creating such an understandably momentous event powerfully and gracefully.

Jordyn

Can we be friends

I am campaigning for friends that live near me.  My mom is helping me write to great kids in our area.

We are in the country about 20 minutes from the closest city.  I haven’t attended school since I was 3 years old.  All my friends live far away – from 90 minute drive to across the world in Australia.  100% I want some friends I can hang out with.

Both my neurotypical friends said they would love to hang out, but are busy being awesome sport stars.  My new friend Liv is teaching me to sew and we have a playdate scheduled to play Uno with her brother and sisters.  I always love hanging out with these people.

Anyone know some cool kids that live near Mono?

I deal with body control always

Can you imagine wanting to get out of the car but your body stays buckled in no matter how hard you command it with your mind?  OR being so excited to ask someone a question that you can’t stop dancing and running about?  Everyday I deal with multiple situations like this.

Lately these incidents have gotten more frequent.  Just today I needed to get out of the house with Mommy but Rocky, my name for my uncontrollable body, had other plans.   There doesn’t seem to be a reason, like a fear or an understandable justifying want to stay, Rocky just goes haywire.

Before understanding about the difference between my wants and Rocky’s behaviours, Mom would have to wait or cancel whatever we had planned.  Now she listens to me only.

Just today at my wonderful Osteopath’s office Rocky was insisting on having the iPad, but I wanted to go without.  Rocky tried every trick he has – like screaming, bouncing up and own on the table, making sweet eye contact with gestures toward the iPad, and mouthing “iPad” with no sound – but Mommy and Tara helped me through it.  100% each time my appointments get more effective because I am in my body feeling the work being done.  Good job Tara is so patient and skilled.

What we have discovered really helps is me telling Rocky what to do on the letter board.  Basically, I have to address my body or it doesn’t work, for example “ROCKY GO TO THE CAR!”  Also Mommy helps with her telling me too.  A special combination of belief that I will, a tone of authority, and a whole lot of love make Rocky move.  Any of those things lacking and nothing moves.  Mommy is my joyful body instructor.

Being a captive to Rocky’s impulsive whims is a bitch, but we are making progress.

Joyfully in control,

Jordyn

{Photo:  Jordyn & his dog, Nelson, on a hike after commanding his body out of the car.}

Not everyday is a good day

I deal with many things that make my life complicated.  Always autism and my uncontrollable boy are a factor, and flow in ebbs and waves.

Each time I start a new activity, I am always surprised by my body’s resistance and need for good outside coaching.  I mean loving, supportive, and authoritative prompting from someone I love.

I get my motor cortex is impaired, so I do not have the same control as someone with a typically functioning one.

Joy is a state of mind, not a destination to strive for.  I create joy in my everyday interactions, whether people understand my body or identify with my autism as a cognitive issue, they all deserve my love.  My intention is to include and educate everyone.

To be a leader I must demonstrate always being a person that listens keenly and tally up joy on the basis of always making whatever difference is needed.  Some may think leadership is just being followed, it isn’t.  Leadership includes creating space for others to grow, contribute, and get incredibly and groundedly inspired.

Everyday I struggle with my body, everyday I wish it behaved differently.  Only an attitude of always improving and forgiving it for the bad days keep me in a mental state to keep moving forward.  Do that mean I don’t have negative thoughts?  Hell no!  I just let them be, and remember that I am the creator of my occurring world and then choose to create a more empowering thought instead.

You have the same power with creating thoughts that empower your Self and mission in life.  The world is crazy and bad things happen to good people, choose to see as a challenge or lesson and move towards joy.  With love and persistence all things are possible.

Happiness is created not found.  I am blessed to have parents who teach by example what leadership and happiness look like.

Jordyn

Beauty is Everywhere

Beautiful people are all over the place.  I am blessed to have beautiful and understanding people in my life.

All my life I have been surrounded by love.  Whether it was for my always fun and giving Playroom Facilitators during my Son-Rise years, or my Child Facilitators with Natural Play Therapy, you always found love around me.

My parents have made sure I am bathed in love.  I am so lucky and grateful.

Just this upcoming week I get to climb, hike, paint, read and be very purposeful with the amazing Kate Hale.  I’m beyond excited.

While Mommy is away learning to be an even more effective Communication Partner, all my angelicness gets to be always showered on Kate, Katie, and LeeAnn.

Hope others are as blessed in their lives.

Jordyn

 

 

Beauty can come in a 100% bold package

Father’s Day was yesterday.  I love my Daddy so much.  Just a father doesn’t sum up what he means to me.

All the time he loves me just the way I am.  Daddy is the most 100% caring human.  You are lucky if you know him.

My Daddy is a very passionate guy when it comes to people and things he cares about.  Always being interested in your life and what you are interested in.

I would love to acknowledge all the Daddy’s out there who provide for their families with love and fun times.

Being Daddy’s son is my honour and privilege.  Boy, totally did I get the right Dad for me.

Yours gratefully,

Jordyn

I was alone, then I got a special friend.

I love my dog Nelson.  It is his 6th birthday today.

I believe the bond between myself and Nelson is very special.

Many people ask what he does for me.  Well, let me tell you the different ways he supports me.

  • He always loves me unconditionally.  This may seem simplistic, but is everything for someone without close friends.
  • I am only now able to articulate that he helps calm me in stressful situations.  So, he helps me with body control.
  • I am a responsible human who takes care of my furry friend.  Feeding, loving, and helping Mom with interpreting his health issues from his moods.  He is a very sensitive being.
  • He is a dog with a heart of gold and helps with when I am helping others deal with negative emotions of illness.  He believes in me and my healing abilities.
  • I get to experience things I wouldn’t be able to 100% deal with (like a Raptors game) because I can be connected and grounded by him.
  • He listens to my dreams for the World, and believes I am capable of making a substantial difference.

Nelson is a beautiful soul.  He is a blessing in a furry body.  My always friend and partner in life.

You believe what you want.  I am telling my truth, in hopes that others understand the power of a Service Dog to change a life for the better.

So grateful,

Jordyn

I love my friends

My birthday was last week.  Baffles me how many people wrote to me on Facebook.  A few people even sent videos.

Having so many wonderful wishes and friends is magical and awe inspiring.

I had:  cake at Makaio’s; steak with Poppy; and a Zoom party last night with Evie, Elliot, Ian, Julie, Jake, and Kaegan.  I have plans with Fox and Brayden, and for a family get together.  Mommy and Daddy get me stuff all the time, so all I asked for was time with these people and others we are still planning.

How did I get such amazing folks in my life?  So blessed to spend time with them and with those that follow this blog.

My wish is always for a calm and peaceful World, where everyone experiences always being joyful.  Basically, your dream World.

As you read this try being a joyous example of 100% love.

I love you all,

Jordyn

So nice to be 100% myself

I am having a very good month.  So much has become clear about how I should fulfill on my mission.   I need to stay focused on joyfully being an example of love and purposefulness.

I am very interested in being productive and learning new things.  I have a long list of projects and beautiful list of friends to correspond with, only it is too much for us to focus on all at once.

My priorities are to learn fast about all things spiritual.  I am not talking religion, but that from which religion comes.  Under each religion lies traditions that honour love and being kind to each other.

I want to learn what is central to all religions, and thus every human.  It is that which will create a foundation to heal that world.

Love is both a wise and a powerful force, but when misused it can be dangerous.  Like willfully being righteous that your religious practices are better than someone else’s.

How about we be our best human 100% selves when we honour each other’s choices and let each other be true to ourselves.  Totally can’t understand how being right is more important than being loving to others.

Try, this week, to choose love.

All my love and a 100% caring of the world’s future –

Jordyn