Not Going to Lie

I find it so hard these days to manage a balance of productivity and recharge time.

Being so sensitive to the emotional climate in the era of Trump, and now Ford (as Premier of Ontario), I am constantly wading through a sea of upset.  It ebbs and flows, and with each announcement of the newest ridiculous statements or sanctions, I get swept away by the collective wave of anger.

Living this way sucks!  I have a mission to bring love and peace to the planet to fulfill.  However, it is slow and hard because I am so darn drained all the time.  My crystals only protect me so much.

Now, while you might be all “oh, poor Jordyn”.  Please don’t pity me.  I am resilient and resourceful.  While I battle the call to fulfill my mission while in a sea of emotional upset, I am clear that this is exactly what I am meant to do.

I don’t spend my time frivolously.  I am calculatedly taking actions consistent with my mission, while balancing that with fun, social opportunities that have me recharge and be in the world in impactful ways as a walking spelling example of my mission.  Do you walk your talk? 

Balance is something I think everyone could strive for.  That and being kinder to everyone with whom you are in contact.

Happily,
Jordyn

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My girl is amazing

What a weekend we had.  Monumentous!

We hiked and we hung out, we laughed and we understood each other, and above all we just enjoyed each other’s company.

A challenge was our impulsive bodies.  It took a lot of practice and prompting just to sit next to her on the couch.  My excitement kept popping me out of my seat.  I trained and subdued that impulse and more this weekend.  I don’t think working on body control could be more fun.

Not many parents would create an environment for the kind of work we did, with such determination and ease.  Shout out to our fabulous Moms.  Anything is possible with the right people by your side – grounding, emotionally supporting, regulating, and prompting.

My dreams keep coming true.  Flying still from our time together.

Jordyn

 

With my love on my birthday

I am 15!  I am so darn happy.

We are spending the weekend in a cabin in the woods with my beautiful, smart, fun, and powerful girlfriend, and her amazing mom.  Best birthday ever!

We so are having the best time hanging out.  We will hike, play games, talk, and hot tub.  Bliss in Blue Ridge, GA.

While it may be raining outside, we don’t care.  Movies and cake and conversation are our rays of sunshine.

Weekend totally only started and I am already forever grateful.

Bliss-filled,

Jordyn

Ship sails without warning

Body control is tricky, as I’ve mentioned.  My body likes what it likes and sometimes it takes everything I have to stop one activity and follow a direction given.  Sometimes it hijacks whatever I am up to that is purposeful with an impulse to climb under the covers of my bed.

When I set an intention or goal that involves more body control, the biggest thing I need is patience.  Like learning to Spell to Communicate I need lots of support through prompting at the start.  And as I develop the motor pathways the prompts can be faded.  It is tedious but effective when practiced consistently.

We specifically are working on me dressing independently right now.  I tap out what I want my body to do on my laminate board then Mommy uses only continuation prompts like “do it” or “get it” to keep me moving to execute the command I gave my body.  I feel the pathways myelinating each morning.

When I set my mind to it, and have the proper loving support, I am clear that the only thing between me and autonomy is time.  Anything I want is possible.  The ship of thinking “I can’t” has sailed.

Jordyn

 

 

I am a sneaky genius

A few weeks ago my friend Katie got bold in a lesson and asked me what I wanted to do for Mommy for Mother’s Day.  My answer was PARTY.  She worked very hard, as we are not fluent on the boards together yet.  We hatched a plan to surprise Mommy with brunch.

I picked the restaurant, the guest list, and the gifts.  The hardest thing was fooling Mom on real Mother’s Day.  I got her some flowers that day with Katie to make sure she was surprised this weekend.

Daddy, Erica, Poppy, and Laura did a good job of keeping it secret.  I love my sneaky family.

So fun to finally be able to surprise and love on Mommy.  She deserves big celebrations.

Jordyn

 

I love my community

Just this past weekend I had the honour of hosting an S2C workshop with Elizabeth Vosseller (EV). We had 14 families with two or three lessons each.  Four new families to EV, and two brand new to boards. There were travelers from Kitchener area and beyond, St. Catherine’s, and the GTA. Ages of students ranged from 8 to 18.

I so loved having my peeps in my hood. How amazing it is to be an Ambassador for these wickedly smart and funny kids.

One of the best feelings in the World is being able to create a space where the magic of communication can expand.  Mom and I passionately advocate for everyone to be their authentic selves and have freedom to express themselves.  Going above and beyond we really always listen for student’s greatness while being a happy grounding force for parents.

I can’t thank Dr. Mark, Dr. Jess, Dr. Trevor and their amazing Staff enough for the use of the space at their offices.  It was perfect!

Absolutely a most badass weekend.

Jordyn

(S2C = Spelling to Communicate)

Body control is tricky

All my life I have struggled with controlling my body.  Whether it was not getting my mouth to say the words I wanted or violently biting and scratching when my sensory system was overloaded, I always felt powerless.  Thankfully, I have very patient and persevering parents who believe in me.

This weekend was a huge test of how far I’ve come.  My body has very set routines at home, so disruptions cause dysregulation.  I am used to having access to YouTube when I need it to help me regulate.  A really bad windstorm Friday knocked out our power, and boy did I need YouTube to get me through the windstorm which sounded like we were in the middle of a jet engine to my ears and sent my sensory system over the edge.

All night Mom and Dad read to me to help me deal.  If you haven’t read my friend Jackson Khabra’s book “Autism and How My Brain Works”, you should.  It was very calming to listen to Jackson’s words and experience of life, which is like mine in many ways.  I was very proud of our teamwork to get me through.

Awaking Saturday, still without power my usual morning chill time was disrupted.  We got out of the house fast and stayed out for the day.  Again reading helped me past my bodies expectations.

Sunday we went for a drive until ready for our lunch date with my Mimi [my grandma].  I was really proud of how well I managed the whole weekend, which could have been one big disaster.

I am so glad my Mom put control of how to deal in my hands.  I got to push myself and manage my impulsive body through it all.

Jordyn

(image copyright – © Creative Commons Zero (CC0))

 

River refresh

My all time favourite place on Earth is just up the road from my house.  The river rages or slowly gurgles depending on the time of year.

Currently I can’t wade in for long because it is just way too cold.  However, that doesn’t stop me from making short trips into the flowing water.

I love the feel of muck squishing between my toes and over the years the river muck has successfully eaten a few Crocs.  The water rushing around my body feels like it is cleansing any bad energy that I may have accumulated.  The hanging canopy of trees wraps me in a blanket of nature, no quasi diabolical and draining WiFi signals to deal with.

Taking walks down the middle of the river is my sensory deprivation tank experience of calming and peacefulness.  I am so grateful to be able to go there almost daily from May to November.  Happiness is the river by my house.

Jordyn

Understand I am super sensitive

Many may wonder about my energy level and sensitivity to the environment.  I hope my sharing my experience here can help others like me.

Just think how walking into a raucous party may uplift you, or walking into a funeral home might have you feel down, or being in a room where people are arguing and you feel the tension.  Well, turn your sensitivity to those emotional environments up by 1000.

Just keeping my body under control to navigate the every day uses all the energy I have.  Now add an emotionally charged environment and/or people and I’m tapped out of control energy.  Like asking a car to maneuver on fumes, it isn’t always going to make it to the station.

I have been having a very hard week after the incident in Toronto with the van.  The way the environment has reacted is highly charged and there isn’t enough joy to balance it out.

I am hoping that the city can move on quickly, because the impact of living in negative emotion soup is affecting everyone.  I feel deeply for those affected directly and am sending them healing energy, but don’t have enough for everyone.

To be an angel is to want to help and heal all.  Daring to be me and not turn off my heart and thankful for a Communication and Regulation Partner who flows with me and grounds me.  Always keeping herself as even keel as possible so I can be my best self.

Jordyn

{image copied from, and credited to https://buddha-corner.com/blogs/news/5-things-you-can-do-today-to-attract-positive-energy}

Do I want a cure?

Mommy asked me if I wanted to contribute to Autism Dialogues project to connect parents and autistics.  I love this idea so I said sure.

Here is my answer to the question “Do you want a cure?”

ONLY if cure means that I make a difference the way very favourite joyfully autistic me can.

My mission to bring love and peace to the planet gives my life a purpose it would not have if I was an only ordinary boy of 14.

Having the gifts I have allows me to joyfully create a nice love filled environment around me like a pebble in a pond that ripples outward.  I would not trade that for a reliable voice or controllable body.

I am understandably for all joyfully helpful supports.  Just no change to who I fundamentally am.

I love myself exactly as I am.

Jordyn

{Water image created by Freepik – https://www.freepik.com/free-photos-vectors/water}